OncoMatch

OncoMatch/Clinical Trials/NCT05104983

Stopping TSC Onset and Progression 2B: Sirolimus TSC Epilepsy Prevention Study

Is NCT05104983 recruiting? Yes, currently enrolling (May 2026). This Phase 2 trial studies Sirolimus for tuberous sclerosis complex.

Phase 2RecruitingDarcy KruegerNCT05104983Data as of May 2026

Treatment: SirolimusThis trial is a Phase II randomized, double-blind, placebo controlled multi-site study to evaluate the safety and efficacy of early sirolimus to prevent or delay seizure onset in TSC infants. This study is supported by research funding from the Office of Orphan Products Division (OOPD) of the US Food and Drug Administration (FDA).

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Extracted eligibility criteria

Prior therapy

Cannot have received: anticonvulsant

Has been treated in the past or is currently being treated at the time of enrollment with conventional anticonvulsant medications (AEDs)

Cannot have received: mTOR inhibitor (rapamycin, sirolimus, everolimus)

systemic (oral) mTOR inhibitors (such as rapamycin, sirolimus, or everolimus)

Cannot have received: ketogenic-related special diet

ketogenic-related special diet

Cannot have received: anti-seizure therapeutic agent, device, or procedure

another anti-seizure therapeutic agent, device, or procedure

Cannot have received: investigational drug

Has taken any other investigational drug as part of another research study, within 30 days prior to the baseline screening visit

Structured fields extracted by AI. May contain errors — verify against the official protocol.

US trial sites

  • University of Alabama at Birmingham · Birmingham, Alabama
  • University of California at Los Angeles · Los Angeles, California
  • Stanford University · Palo Alto, California
  • Children's Hospital Colorado · Aurora, Colorado
  • Lurie Children's Hospital of Chicago · Chicago, Illinois

Showing up to 5 US sites. See all sites on ClinicalTrials.gov →

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